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Community & Business Groups

BDE-Health, Demographic Change and Wellbeing Community Group

This group closed in April 2016; work has moved to the Big Data Europe Community Group.

This is one of 7 Community Groups established under the BigDataEurope Project, a Coordination and Support Action under the European Union’s Horizon 2020 Programme, each one tailored to a specific Societal Challenge. The discussions in this group will be used to design and realise the ICT infrastructure needed to benefit from big data technologies, maximising the opportunities of the latest European RTD developments, including multilingual data harvesting, data analytics, and data visualisation.

This Community Group is specifically interested in the Health, demographic change and wellbeing challenge and is lead by the Open Phacts Foundation.

This group will not publish specifications.

Note: Community Groups are proposed and run by the community. Although W3C hosts these conversations, the groups do not necessarily represent the views of the W3C Membership or staff.

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First BDE-Health Webinar writeup

[crossposted at big-data-europe.com]

The first BDE Webinar for Societal Challenge 1: Health was held on the 25th of November. The goal of this virtual meetup was to present the current state of affairs to SC1’s stakeholders and to discuss the proposed pilot in this challenge. In total, 9 people attended the webinar, four of which were BDE presenters.

To start of the webinar, Victor de Boer from VU University Amsterdam who filled in for Bryn Williams-Jones presented the overall setup of the BDE project and the pilots in particular. He discussed the background of the Health pilot by recapping the main objectives of the OpenPHACTS project. View the slides here.

Aad Versteden and Erika Pauwels from BDE-partner TenForce then presented the current state and setup of the BDE Big Data platform. They discussed background issues around ‘big data’, presented the overall architecture and what the different components will look like. View their slides here.

Ronald Siebes from VUA then continued by detailing the SC1 pilot. For the first Health pilot, we will replicate part of the OpenPHACTS functionality, to ensure that the BDE infrastructure is able to deal with the issues surrounding the Variety of data. In subsequent phases, the pilot will be extended with more functionality, targeting other “V’s” of Big Data such as Velocity or Volume. Ronald’s slides can be found here

Finally, the floor was opened for a short but interesting discussion. From the discussion, we take that it will remain a challenge for BDE to make sure that the generic architecture of the platform is able to deal with the wildly varying demands of domain experts in the SC domains. Also, we were reminded that the piloting and evaluation methodology of OpenPHACTS was one of its success factors. This is something that we will indeed be taking into account in the BDE piloting and evaluation plan, the first version of which will be delivered at the end of this year.

Join our webinar for update on the challenge of Health, Demographic Change and Wellbeing

Following the initial workshop in this area in May 2015,  BigDataEurope will organise a webinar on Monday, 25 November 2015 14h00-15h00 CET.

This webinar will give an overview of the BigDataEurope project, and update on the technical status of the BigDataEurope infrastructure, an introduction to our first pilot in this domain, and an overview of the evaluation approach  for this challenge and the project in general.

Speakers are:

  • Bryn Williams-Jones, Open PHACTS Foundation, providing a brief  overview of the project and the challenge (10 mins)
  • Aad Versteden and Erika Pauwels, Tenforce, giving an update of the current technical status of the BDE infrastructure (20 mins)
  • Victor de Boer and Ronald Siebes, VU University Amsterdam, introducing the pilot for this challenge and providing an overview of the evaluation approach for this challenge and the project in general (20 mins)

 

The webinar will be concluded with a Q&A session.

To register for the webinar, please click here.

Continue the discussion in this W3C group, or subscribe to our newsletter to find out more on how you can get involved.

We look forward to your participation!

Tags: big data, Big Data Europe, webinar

Full report from SC1 first workshop available

Full report on our first workshop in May highlighting key themes such as

  • how large scale data interoperability in this domain is effected by standards, vocabularies and ontologies
  • veracity and provenance of data sources as the key to building user trust
  • standardisation approaches required to ensure interoperability
    • being clear about data areas where standardization would be a challenge owing to gaps in existing tooling
  • how advances in visualization are needed to gain impact and value from big data
  • the importance of privacy and security especially as this relates to patient/private data
  • how policy is influenced by smart ideas and innovation
  • establishing, recognizing and sharing best practice

 

PublicBDESC1.1Workshop20150521Report

Upcoming conferences relating to big data and SC1

There’s some great conferences coming up in this domain relating to big data in healthcare use cases. Some of these there will be BDE representation, but all are relevant to the challenges on using big data in this societal challenge. So, if you want to understand more about big data and how it relates to our use cases then please consider coming along to all/any/some of these:

  • BioData World Congress 21-22 October 2015 at the Wellcome Trust Genome Campus in Hinxton, Cambridge “Genomics, big data and bioinformatics mark the start of the journey, personalised medicine is the end goal. How we get there will depend on whether we can get useable intelligence from the data – and then acting on it. “
  • Open Bridges for Life Science Data 17-18 November 2015 at the Wellcome Trust Genome Campus in Hinxton, Cambridge “Join us to discuss the latest advances in the technical infrastructure behind large-scale data sharing in the life sciences, and the interoperability of data resources supporting biological, medical, translational and clinical research.”
  • Target Validation using Genomics and Informatics 8-10 December at the Wellcome Trust Genome Campus in Hinxton, Cambridge “This meeting will bring together researchers based in academia and industry to focus on the opportunities and challenges for genomics in drug discovery”

The location of these meetings is co-incidental, but all are very relevant to the challenges of big data in this domain, and particularly highlighting the 4Vs of big data – or perhaps in this domain variety variety variety and variety!

First BDE workshop completed

n the health and demographic change societal challenge, we held our first BigDataEurope workshop in Brussels on 21st May 2015. The aim of the workshop was to introduce the BDE project to key stakeholders, spend some time discussing key challenges in this domain with invited experts, then breakout into groups to highlight challenges and requirements for the BDE aggregator platform building.
Key challenges in applying big data approaches to healthcare and demographic change that were identified included:
  • how large scale data interoperability in this domain is effected by standards, vocabularies and ontologies
  • veracity and provenance of data sources as the key to building user trust
  • standardisation approaches required to ensure interoperability
    • being clear about data areas where standardization would be a challenge owing to gaps in existing tooling
  • how advances in visualization are needed to gain impact and value from big data
  • the importance of privacy and security especially as this relates to patient/private data
  • how policy is influenced by smart ideas and innovation
  • establishing, recognizing and sharing best practice
A full report will follow, watch this space and please keep in touch through:

Call for Participation in BDE-Health, demographic change and wellbeing Community Group

The BDE-Health, demographic change and wellbeing Community Group has been launched:


This is one of 7 Community Groups established under the BigDataEurope Project, a Coordination and Support Action under the European Union’s Horizon 2020 Programme, each one tailored to a specific Societal Challenge. The discussions in this group will be used to design and realise the ICT infrastructure needed to benefit from big data technologies, maximising the opportunities of the latest European RTD developments, including multilingual data harvesting, data analytics, and data visualisation.

This Community Group is specifically interested in the Health, demographic change and wellbeing challenge and is lead by the Open Phacts Foundation.


In order to join the group, you will need a W3C account. Please note, however, that W3C Membership is not required to join a Community Group.

This is a community initiative. This group was originally proposed on 2015-04-17 by Phil Archer. The following people supported its creation: Phil Archer, Vangelis Karkaletsis, Bryn Williams-Jones, Victor de Boer, Guus Schreiber, Martin Kaltenböck, Rigo Wenning. W3C’s hosting of this group does not imply endorsement of the activities.

The group must now choose a chair. Read more about how to get started in a new group and good practice for running a group.

We invite you to share news of this new group in social media and other channels.

If you believe that there is an issue with this group that requires the attention of the W3C staff, please email us at site-comments@w3.org

Thank you,
W3C Community Development Team