<ericP> http://www.w3.org/2011/05/HCLSIGCharter-proposal

scribenick BobP

ericP: Brag sheet for TMO, or high level use cases. What is the next doc to write?

<iker> me neither

ericP: humm,,,

<dbooth> I think stepping through would make sense

Heard from Michel and Scott.

<dbooth> I think reviewing the documents would make sense.

scribe: presented at the meeting in London. Protocol-driven research
... modify the standard to fit to the BRIDG model

ericP: Liason to them? for charter

FDA in long term needs to expand regulatory, semantics, etc

ericP: Two diff communities for similar stuff.

Onts. cover tissue, main touch points to bridg, biobanking

ericP: Experiments need to capture context; touches on Pfizer, Pistoia want to do
... having worked out onts, given schema for graph struct, ont for grounding
... then intersection between bridg and lsdam

HCLS work shines; collaboration could bring strengths to table

scribe: harmonize to one project, maybe

ericP: Give us use cases

Harmonizes to HL7 RIM modeling; possibly FDA, could contribute to effort

Michel: Was invited w Scott, Alan Ruttenberg
... not clear what the mandate was. Ended up disseminating to WGs
... WGs on imaging, provenance; I went to WG on patient care
... snomed, etc; They don't yet grok semweb. Explained for vocab managment, integration
... some nice work, to mark up notes w bioPortal vocab; pile of codes for visits
... can do longitudinal with that.
... also tried to get patient record data, but couldn't quite
... see HCLS as a potential partner; need to visibly engage these groups and work w them

ericP: Targets?

Michel: Have a diversity of interests; can help them develop. Interested in SADI etc
... linked data projects, don't quite understand the governance, lack of support, etc
... some things that we need to work out to ensure the confidence in our product

ericP: Produce less LOD, but better life cycle?

Michel: Perhaps. Notes on how to accomplish these tasks; we still should describe how to use tech

ericP: Matthais is excited w clincical decision support

Michel: Meeting kept pushing on how it helps patient care; tech details
... we have tech, not applying correctly?
... patientsLikeMe, how can we make it better for patients, as opposed to for doctors

ericP: Doctor work will help patients; but patient appeal would be tools that allow them to explore their disease
... most immediate case for patient would be <disease-centric?>
... also patient registries would allow them to contribute to massive data

Michel: Need to address improved care rather than research
... patients are very active. Agree that marketplace over patient data would be valuable
... but not clear to me that beyond condition, treatment, outcome would be interesting
... but - are interested in clinical trials.

ONC is started to employ, >2015

ericP: Chartering. Thx to Dave and Michel.

<Zakim> dbooth, you wanted to comment on use cases document: http://www.w3.org/wiki/HCLSIG/HighLevelUseCases

dbooth: Want to comment on use cases

<dbooth> Personalized medicine

dbooth: two other things to include:
... somewhat related to section on data ownership. Important potential here.

<dbooth> Healthcare quality measurement

dbooth: partially mentioned in pharmaco-vigilance
... would like to see HC quality measurement in title

ericP: Same data, same mechanism; however the way we talk is different when talk to different communities

<DaveHauNCI> Report on Learning Healthcare System (Institute of Medicine): http://www.iom.edu/Reports/2011/Digital-Infrastructure-for-a-Learning-Health-System.aspx

<DaveHauNCI> ONC slide deck on Learning Healthcare System: http://www.iom.edu/~/media/Files/Activity%20Files/Quality/VSRT/Digital%20Infrastructure%20Release/Charles%20Friedman.pdf

dbooth: Research and bedside have different liability profiles

ericP: Next steps on charter. Couple of months extension; draft is pretty there
... is it optimal? Expect to get warm-fuzzy soon
... opportunity for outreach: brag-sheets for translational and high-level use cases
... give us the necessary text for customers, outreach material more important than charter

Michel: Will comment on docs

<dbooth> ADJOURNED

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Default Present: Bob_Powers, +1.617.324.aaaa, DBooth, +1.301.443.aabb
Present: Michel_Dumontier Iker Dave_Hau EricP Bob_Powers +1.617.324.aaaa DBooth +1.301.443.aabb
Got date from IRC log name: 16 Jun 2011
Guessing minutes URL: http://www.w3.org/2011/06/16-hcls-minutes.html
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<dbooth> Topic: Review of Amy's report