{"id":9529,"date":"2025-11-08T23:32:48","date_gmt":"2025-11-08T23:32:48","guid":{"rendered":"https:\/\/www.w3.org\/community\/blog\/2025\/11\/08\/proposed-group-universal-health-data-schemas-for-privacy-preserving-ai-community-group\/"},"modified":"2025-11-08T23:32:48","modified_gmt":"2025-11-08T23:32:48","slug":"proposed-group-universal-health-data-schemas-for-privacy-preserving-ai-community-group","status":"publish","type":"post","link":"https:\/\/www.w3.org\/community\/blog\/2025\/11\/08\/proposed-group-universal-health-data-schemas-for-privacy-preserving-ai-community-group\/","title":{"rendered":"Proposed Group: Universal Health Data Schemas for Privacy-Preserving AI Community Group"},"content":{"rendered":"\n<p>The Universal Health Data Schemas for Privacy-Preserving AI Community Group has been proposed by Amir Hameed Mir:<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity is-style-dots\"\/>\n\n\n<p>The mission of this group is to define a universal, modular, and interoperable set of data schemas for health information. Our goal is to enable the aggregation and utilization of data for medical research and AI training through privacy-enhancing technologies (PETs) like Zero-Knowledge Proofs (ZKPs), while ensuring patient control and consent via Verifiable Credentials (VCs).<\/p>\n\n<p>Scope and Problem Statement<\/p>\n\n<p>The development of robust medical AI is hampered by siloed, non-standardized, and sensitive health data. Current data formats are incompatible across institutions, and privacy regulations prevent the sharing of raw data, creating a significant barrier to collaborative research. This group will address this by creating schemas that transform health data into standardized, verifiable, and privacy-preserving assets.<\/p>\n\n<p>Key Deliverables<\/p>\n\n<ul>\n<li>A core set of modular, extensible Verifiable Credential schemas for common medical data types (e.g., lab results, imaging reports, prescriptions, diagnoses)<\/li>\n<li>Best practice guidelines for issuing these VCs from trusted sources (e.g., hospitals, clinics)<\/li>\n<li>Specifications for generating Zero-Knowledge Proofs from these VCs to enable privacy-preserving queries and analytics<\/li>\n<li>Use cases and implementation patterns for federated learning and AI model training using the proposed schemas and ZKP protocols<\/li>\n<\/ul>\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity is-style-dots\"\/>\n\n\n<p>\n    You are invited to <a href=\"https:\/\/www.w3.org\/community\/groups\/proposed\/#sirraya-uhds\">support the creation of this group<\/a>.\n    Once the group has a total of 5 supporters, it will be launched and people can join to begin work. In order to support the group, you will need a <a href=\"https:\/\/www.w3.org\/account\/request\/\">W3C account<\/a>.\n<\/p>\n\n\n\n<p>Once launched, the group will no longer be listed as &#8220;proposed&#8221;; it will be in the list of <a href=\"https:\/\/www.w3.org\/community\/groups\/\">current groups<\/a>.<\/p>\n\n\n\n<p>\n    If you believe that there is an issue with this group that requires the attention of the W3C staff, please send us email on <a href=\"mailto:site-comments@w3.org\" target=\"_blank\">site-comments@w3.org<\/a>\n<\/p>\n\n\n\n<p>Thank you,<br \/>\nW3C Community Development Team<\/p>\n\n","protected":false},"excerpt":{"rendered":"<p>The Universal Health Data Schemas for Privacy-Preserving AI Community Group has been proposed by Amir Hameed Mir: The mission of this group is to define a universal, modular, and interoperable set of data schemas for health information. Our goal is &hellip; <a href=\"https:\/\/www.w3.org\/community\/blog\/2025\/11\/08\/proposed-group-universal-health-data-schemas-for-privacy-preserving-ai-community-group\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":24181,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"","footnotes":""},"categories":[],"tags":[],"class_list":["post-9529","post","type-post","status-publish","format-standard","hentry"],"_links":{"self":[{"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/posts\/9529","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/users\/24181"}],"replies":[{"embeddable":true,"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/comments?post=9529"}],"version-history":[{"count":0,"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/posts\/9529\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/media?parent=9529"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/categories?post=9529"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.w3.org\/community\/wp-json\/wp\/v2\/tags?post=9529"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}